Dedicated Fetal Alcohol Spectrum Disorder Clinics Including Diagnosis and Therapy
Contact Your State Officials at one time! Don’t just grumble online to “THE CHOIR”! If you want to connect with your California elected officials, see this site first. Bookmark this link, especially if you want to contribute your point of view about FASD
FASD News & Research
For Parents & Caregivers
For Teens & Young Adults Affected by FASD
The private Facebook group, FLYING WITH BROKEN WINGS is for those affected by FASD. To join the group, go to the group link from your Facebook profile page and click on the Join Group link.
See Charles Haire’s site at FASSurvival.com. In his words, the site is “designed to be a place of resource for those individuals living with a brain injury and FAS (fetal alcohol syndrome).”
Here is an email list for teens and young adults with FASD. The site also lists other resources for persons living with FAS or any other type of FASD.
Find Your Congressional Representatives
For Persons With FASD and One or More Co-Occurring Condition
Disability Rights Resources
Family Resource Centers
Strategies is a nationally recognized alliance of professional trainers, organizational development coaches, facilitators and support staff. Its offices are located in Southern and Northern California. Funding comes primarily from the California Department of Social Services, Office of Child Abuse Prevention (OCAP).
The Strategies Directory of Family Strengthening Organizations page helps you search for and find family support programs and family resource centers in your state and local area.To narrow your search, try the Advanced Search feature.
Resources for Research into FASD
Several organizations are involved in ongoing research, program evaluation, and advocacy for improved diagnosis, treatment, and public awareness of FASD, including Alcohol Related Neurological Disorders (ARND). These include:
Centers for Disease Control and Prevention, Fetal Alcohol Spectrum Disorders
National Institute on Alcohol Abuse and Alcoholism
Substance Abuse and Mental Health Services Administration, FASD Center for Excellence
American Academy of Pediatrics
Collaborative Initiative on Fetal Alcohol Spectrum Disorders
Fetal Alcohol Spectrum Disorders Study Group
These are some of the best English-language websites with useful information about FASD.
Circle of Hope
The Circle of Hope was founded in 2004 by FASD United Vice President Kathy Mitchell. It is a network of women who have consumed alcohol during pregnancy and may have a child or children with Fetal Alcohol Spectrum Disorders formed to support one another.
Social media, by nature, changes as fast as users can post a message or an image to the virtual community. Therefore, keep in mind that, even more than any other link on this web site, the entries below by no means reflects a final, or even a current list of what’s available.
But if you are a subscriber of Twitter, Facebook, YouTube, or other social media sites, the following links represent a good place to start to identify other individuals and groups interested in FASD. Social media is also a good way to learn about current research, events, trends, and “chatter” related to prevention, awareness, and treatment of FASD.
The lists below contain links to social media sites that share information helpful to English-speaking people in California. It may also interest visitors to this page living elsewhere in the United States and Canada, and anyone from anywhere outside of North America who is comfortable understanding and communicating in written English.
If interested, there is also social media communication targeted specifically to people in other U.S. states, Canada, Great Britain and the United Kingdom, Australia, New Zealand, and South Africa, and to those who communicate in languages other than English.
These links lead to the latest Twitter feeds found by using these FASD-related search terms. The results should be current whenever you click on them, and will give you some idea of Twitter users you may want to “follow” or communicate with.
Fetal Alcohol Forever with Jeff Noble. Daily snippets on understanding and supporting people with FASD.
F.A.F.A.S.D. Page of the web site of the same name. The organization’s director, Adrienne Bashista, also administers a secure group, called “Shifting the paradigm: towards a neuro-behavioral approach to FASD.” See below.
The FASD Wheel (Fetal Alcohol news & tips)
Roots to Wings Fetal Alcohol Spectrum Disorder support group
FASD FASD (a) “FLYING WITH BROKEN WINGS” An especially valuable, secure group for adult Facebook users who have FASD, and the adults who want to understand them better. Parenting FASD Kids
Shifting the paradigm: towards a neuro-behavioral approach to FASD. This group is “about changing our focus in caring for people who have FASDs from trying to manage behavior to instead, see behavior as a symptom as what is going on in the brain.” Based on the “neurobehavioral” approach to intervention in FASD, made famous by FASD author, trainer and researcher Diane Malbin; for more information, see fascets.org.
FASD California. Sharing information about FASD-related support and advocacy in California.
Southern California FASD Information & Support Network. The Facebook group linked to the FASD Network of Southern California.
Homeschooling the FASD way – a global community. For parents homeschooling children with FASD and those interested in the subject.