The Dissecting the Genetic Contributions to Fetal Alcohol Spectrum Disorders (DiG FASD) study aims to understand how genetics affects the health and appearance of FASD in individuals who have or who may have a fetal alcohol spectrum disorder.

Researchers at Indiana University School of Medicine are enrolling both children and adults who were prenatally exposed to alcohol to share their genetic and other information for the study. The study will recruit volunteer participants throughout the study period, which spans almost four years, from July 12, 2018 to May 31, 2022.

Parents or guardians of children or adults ages 7 and older who were prenatally exposed to alcohol may enroll their loved one for the study. In addition, adults at least 18 years old who were prenatally exposed to alcohol may enroll themselves and participate in the research.

Participation in DiG FASD will take place from home. No in-person visits are required.

Participants will be asked to provide the following:

• Contact information (name, address, phone, and email)
• Demographic information (such as age, gender at birth, gender identity, and race)
• Health histories (including information about prenatal alcohol exposure and previous FASD evaluations)
• Facial photographs (from a mobile phone, tablet, or digital camera)
• Saliva sample

All information and photographs that participants provide will be kept confidential and secure, and will be used for research purposes only.

For more information, visit https://digfasd.org; or contact Elizabeth Rowe, Project Manager: email: fasd@iu.edu, or phone: 844-378-0002

Mailing address:
Department of Medical and Molecular Genetics
HS 4000 MMGE
Indiana University School of Medicine
410 W. 10th St.
Indianapolis, IN 46202